How 2019 went. ♥
emails we sent (the most opened welcomed our new board chair, John Foley) Click the picture below to see our team!
new Beat Nb team members
Micaela Sheinhait joins the team as our Community Engagement Director, based in the Boston area.
AJ Hurley shares our impact visually as our Creative Director - or chief digital storyteller. He's in Tampa.
How We Work
Our approach to beating cancer for kids is unique. When we began, we partnered with a bold researcher, Dr Giselle Sholler, to create a research consortium. This group of children's hospitals and research institutions provides an international network where kids can enter the clinical trials you're helping us fund.
Clinical trials usually go from ideation to enrolling kids in less than a year. This model allows for greater access to clinical research by families - it is often difficult for young families to travel out of state to access cutting-edge care.
We (Beat Nb) tell the stories, share the need, and raise funds to cover the costs of clinical trials and research.
This model is working. Our research partners - now at 49 sites - are bringing new therapeutic options to kids. Kids are living longer. We continue to work toward every child and family receiving a promise at diagnosis of "we know how to beat this."
Here's a look at what we're up to with the Beat Childhood Cancer consortium.
49
1,029
387
Beat Childhood Cancer Enrollment by Year
21
6
16
640
From the beginning, we've been made up of an inspiring group of parents and advocates pushing for better outcomes for kids fighting neuroblastoma and other childhood cancers. We continue to be effective by working alongside many passionate and action-oriented communities, often centered around a specific kid fighting cancer.
It's been said "if you want to see if there's good in the world, spend a day with a family whose child is fighting cancer." You will quickly be inspired by the way people around that family pour out their time, effort, and finances to help. Pair that with the deep gravity of the fact there's a KID fighting cancer... the good alongside the difficult makes you catch your breath, and moves us to tears almost daily.
Below are just some of the stories from our community this year. There are many, many stories we haven't shared here. At the core of what we do is one driving goal: for kids to beat cancer. And we are doing that. The beautiful friendships, tragic heartbreak, and inspiring moments we get to be a part of along the way are something we will cherish forever, and are so grateful to be a part of.
1429
square feet of the Harlow House, a home built from donated labor and materials in Evansville, WI. Proceeds from the home's sale helped fund the very clinical trial Harlow is beating cancer on! The home was purchased by a childhood cancer survivor.
6" x 4.5"
Size of a postcard remembering Laurel Pearl Bares, featuring her ladybug art. Her mom, Leah, writes:
My daughter, Laurel Pearl, passed away on June 15, 2018 after bravely fighting neuroblastoma (pediatric cancer) for 16 months. She loved ladybugs and made this painting for me one day.
Laurel's family and community have organized several fundraisers in the Taunton, MA area in Laurel's memory, to change her story for the next family. We say her name often.
miles run through the woods of Kentucky and Indiana by Team Neva this year at Ragnar Kentuckiana. Neva is beating cancer in San Francisco - check out the video to learn a little more of her story!
Google results for "Waylon Klitzman" cancer, a wonderful story of a caring young man in Wisconsin who auctioned off his pig to raise money for childhood cancer research. It wound up being sold and donated back for a total of 4 sales, and over $10,000!
Those Google results include articles in CNN and the Washington Post!
Photo by Angela Major
Revenue and Support
2018 (January 1 - December 31)
| OPERATING REVENUE & OTHER SUPPORT | 2018 |
| Gifts, Grants, and Contributions $ | 590,043 |
| Proceeds from Fund Raising Events | 722,604 |
| Less: Cost of Direct Benefits to Donors | (194,348) |
| TOTAL SUPPORT AND REVENUES | 1,118,299 |
| EXPENSES | |
| Program Services (Childhood Cancer Clinical Trials and Research) | 992,942 |
| Administrative | 83,289 |
| Fund Raising | 118,692 |
| TOTAL EXPENSES | 1,194,923 |
| CHANGE IN NET ASSETS | (76,624) |
| UNRESTRICTED NET ASSETS (BEGINNING OF YEAR) | 104,256 |
| UNRESTRICTED NET ASSETS (END OF YEAR) | 27,632 |
directly to our mission of
helping KIDS beat cancer
Growth in Total Revenue and Support
We continue to grow year over year (aside from an astounding 2014 when one donor gave $1 million!)
With your help, what started as a hope we could make a difference for kids fighting neuroblastoma has become an organization affecting real change.
Beat Nb is a 501(c)(3) • Our EIN is 27-2314549 • Home
The picture at the top of this page is Hannah. She's beating neuroblastoma in Sarasota, FL.
♥