This Week in Neuroblastoma – 5/28/12

During treatment we used to hear often “cancer never sleeps.” I’ll be more specific and state “neuroblastoma never sleeps.”

In an effort to continue raising awareness of the disease, we’re starting a new weekly series called This Week in Neuroblastoma (#twiNB). Essentially, we’ll mention a few of the past week’s happenings from around the net. And now – week 2!

Taylor Swift Pledges Support to Neuroblastoma Non-Profit CNCF

Winners of the CMT Music Awards (to be held June 6) choose a charity of choice who the CMT donates money to for each winner. Taylor Swift this year chose Chicago-based CNCF – a neuroblastoma fundraising and awareness raising organization! CNCF

Clinical Trial of Crizotinib Sees 3 Year Old Edie Cancer Free

3 year old Edie Gilger was diagnosed with stage 4 nb in December of 2009. After relapsing, she has tried an experimental drug by Pfizer called crizotinib – and so far is over 6 months cancer free; the longest she’s been. WSET

Mom of NB Survivor John William runs with Relay for Life

John William – 5 years cancer free after being diagnosed in 2006 with stage 4 nb – has a mom who’s running to end cancer. She’s raised over $32k in the past 3 years running with Relay for Life! SI Live

Survivor Allison Hawkes Walks for Cancer

After being diagnosed with stage 4 neuroblastoma at the age of 6, Allison Hawkes has now beat it 3 times. She is now 18, and runs in Relay for Life to raise awareness and funds. This year she was voted co-chair of the city’s relay! My FOX Boston

Pixie Printz – Fingerprints Charm Business Started by NB Mom

Carrie Stanley’s daughter Leiryn was diagnosed with stage 4 nb at the age of 20 months. Amazingly, 2 years later her cancer has not progressed at all, and she is a happy 4 year old! They’ve started a company to create fingerprint charms for families at a much lower price than were previously available. My FOX Boston