This week a three year old superhero fights his final fight against neuroblastoma, and our tears are with the family. Also, a mom sells cookies to raise funding for neuroblastoma; and there is a new and promising treatment for children battling this horrible disease.
Here’s this week’s links…
Kids – Why We Fight
Three year old Carter Dang, a.k.a. Super Carter, died at home Thursday afternoon following his battle with Neuroblastoma. The Huntersville Fire Department had made Carter an honorary firefighter just weeks before Carter’s passing. Please keep the Dang family in your thoughts and prayers.wcnc.com.
Non-Profits / Events / News
Anya Bentham, 2, was diagnosed with neuroblastoma in October 2012. Shortly after her diagnosis, Anya’s parents started an appeal to raise funding in the chance that she relapses and will need to travel to the US for further treatment. “It feels like there’s never any escape. It will take years for us to believe that Anya is completely clear of the cancer – we live in fear every day of a little sniffle or ache,” says Anya’s father Graeme Bentham. Currently, Anya is doing very well and was declared NED last summer.dailypost.co.uk.
The Wheeling Nailers hockey team, Figaretti’s Restaurant and the Rotriga family have teamed up for a ‘Hope for Hines’ event. The Nailers will donate a portion of the proceeds to the Rotriga family whose two year old son Hines was diagnosed with neuroblastoma in December. Thank you Nailers for your support!wtov9.com.
A year after her son was diagnosed with neuroblastoma, Gretchen Witt launched her nonprofit, Cookies for Kids’ Cancer, which helps companies raise funds through sports tournaments, fun runs and bake sales. More than once, Ms. Witt and Cookies for Kids’ Cancer has been the beneficiary of a baker trying to break a Guinness world record. In the past five years, Ms. Witt has raised $8 million. Her son, Liam, died in 2011 at age 6.crainsnewyork.com.
Andrew Remund, 5, has been fighting stage IV neuroblastoma since September 2012. Andrew has had six rounds of chemotherapy and two surgeries between his fifth and sixth rounds of chemo. A fundraiser has been set up at Chili’s in Yuba City in which Team Andrew will receive 15% of the day’s donations. Currently, Andrew is NED. Keep up the fight, Andrew!gridleyherald.com.
UTHSCSA Researchers at the Center of Improved Lab Screening Techniques For New Neuroblastoma Therapies For Children
Side effects from cancer treatments are very harsh for children. For children fighting neuroblastoma, a new report has come out that explains the critical role of microRNAs in regulating neuroblastoma development — a finding that could pave the way toward developing new, more effective therapeutic possibilities for the disease that would lead to better outcomes and fewer side effects. MircoRNA-based therapy targets only the malignant cells in the body. This promising therapy is also much easier on the youngest cancer fighters. We are eager to find out more about this new neuroblastoma treatment!bionews-tx.com.
A parent’s worst nightmare came true for a Drogheda, Co Louth family when they found out that their 17 month old daughter had a grapefruit sized tumor on her kidney. Baby Alice Turner was diagnosed with neuroblastoma in December 2013, and has begun an intense 18 month treatment course. Alice’s parents have set up A Chance For Alice Trust to raise funds for Alice’s treatments. To donate to Alice’s fund, please visit: www.idonate.ie/achanceforalice or see her Facebook page www.facebook.com/achanceforalice. irishmirror.ie.
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