This Week in Neuroblastoma – 04-03-14

Numerous fundraisers this week, a couple family members being nominated for awards for their heroic dedication to a child battling neuroblastoma and an eye-opening article of the devastating consequences war has on children battling cancer.

Here’s this week’s links…

Kids – Why We Fight

Non-Profits / Events / News

Coffee morning to support Sam Shaw Appeal

Who doesn’t like a cup of Joe first thing in the morning? Well, if you live in Hoddlesden get to the Carus Centre this Saturday morning and you can enjoy your favorite coffee and help Neuroblastoma fighter Sam Shaw! Any money raised but not needed will stay with the Neuroblastoma Children’s Cancer

York shop raises money in memory of Jamie Inglis Appeal

The Original Factory Shop raised £2,330 for the Jamie Inglis Appeal in aid of the Neuroblastoma Alliance. Jamie Inglis, 7, passed away last year after a courageous battle with Neuroblastoma. Jamie Inglis Appeal was originally created to help fund Jamie’s cancer treatment and all money donated after medical expenses are paid will go to help other children having neuroblastoma treatment. Great work Original Factory Shop!

Don a silly hat

On May 16, 2014, everyone is asked to don a silly hat and make a donation in memory Neuroblastoma princess Madison Allan. Madison was just 7 years old when she died and fought cancer since she was 10 months old. Her family created the Maddi’s Butterflies which grant small wishes for children suffering from Neuroblastoma and other cancers. To make a donation or to learn more about Maddi’s Butterflies, please visit:

Going all purple to fight threat of childhood cancer

Over 20 Sussex businesses, clubs, schools and churches will be going purple on Friday, April 4, 2014, to raise awareness for Neuroblastoma and to raise funds for the Neuroblastoma Children’s Cancer Alliance UK. To donate please visit

Cancer Patient Helps MSU Cut Down Nets

Such a sweet article! Neuroblastoma fighter, eight year old Lacey Holsworth assisted Michigan State forward Adreian Payne cut down the nets Bankers Life Fieldhouse in Indianapolis to celebrate the Spartans’ Big Ten tournament title. We cannot thank you enough, Adreian for your continuous support of Lacey!

Cancer Takes Zacharia, A Syrian Child Caught Between War And Disease

On March 13, TIMES Magazine ran an article of a four-year-old Syrian boy caught at the tragic intersection of war and cancer. Zacharia was diagnosed with Neuroblastoma last year and was undergoing treatment until the hospital he was at was destroyed. Zacharia and his family was forced to take a 2 hour bus ride to Damascus for treatment. Eventually, war made the trip impossible and Zacharia was forced to miss treatments. On March 17th, Zacharia died. We are very fortunate in the US to not have to endure such struggles. Please keep Zacharia’s family in your thoughts and

Second-time lucky for Yemeni patient

Salim Abdullah, 9, became paraplegic two years ago practically overnight due to neuroblastoma. Salim and his father, Mohammed, traveled from Yemen to Bangalore for treatment. His initial treatment was successful, however, a year later Salim relapsed. His father brought him back to Bangalore for innovative treatment in which he went through a cyber knife treatment in the brain (where high dose beams of radiation are robotically delivered to a tumour) after which he had to undergo a bone marrow transplant along with chemotherapy. Today, Salim is cancer-free! Please keep Salim in your thoughts and prayers and pray that his cancer stays away.

Boy with cancer uses Lego shopping spree to help others

Aaron Maier, 10, has fought neuroblastoma for nearly half of his life; tragically, his cancer has stopped responding to treatment. The Children’s Wish Foundation granted Aaron his wish of a shopping spree to the Lego Store; however, instead of just buying Lego sets for himself, Aaron also purchased other toys for other children battling cancer. Aaron, you’re such an amazing kid. We are praying for you!

“Stompathon” zumba event to be held tonight in memory of Jamie Inglis

A zumbathon is being held in memory of 7 year old neuroblastoma fighter Jamie Inglis as a campaign to ‘Stomp-Out Children’s Cancer’. Vicky Inglis Jamie’s mother, said: “When Jamie was poorly he asked the doctors to take out his angry cells and stamp on them so this event is particularly apt to remember him. I’d urge anyone to come down and participate or sponsor us.” We hope that the event is a huge success!

Father of Pride of Bucks winner urges people to nominate

In 2013, nine-year-old Jennifer Sharp, was handed the Child of Courage prize and the whole audience was touched by her emotional story. Jennifer had looked after her brother Alex, who died of neuroblastoma last year when he was just five years old. Since his passing, Jennifer’s father, Ben has been encouraging others to share their story to get nominated for the prize. “It is great that people are recognized for the work they do and it’s great that others can come forward and nominate them,” says Ben. The Child of Courage prize is open the county’s bravest youngsters under the age of

United Hospital Center Hopes to Bring Music Therapy Program to the Cancer Center

United Hospital Center offers many programs and services for cancer patients that can make the experience a little easier and now it hopes to add one more program to the center, but they need your help! UHC wishes to bring music therapy to their patients through the Livestrong Foundation’s “Community Impact Project.” There are 60 hospitals in the running for this music program but only 39 will be chosen. Please cast your vote for UHC by visiting: . Contest ends April 11,

Henry Allen’s mother Dawn, from Milton Keynes, shortlisted for Inspirational Mother Awards

Dawn Allen was nominated for the Inspirational Mother Award for her work in helping brave son Henry, four, in his battle against neuroblastoma. Henry’s battle tragically came to an end in October 2013. Dawn set up the Henry Allen Trust, which is helping ‘create smiles’ for the families of children aged up to 18 after a cancer diagnosis. We hope to hear that Dawn wins this prestigious award soon!

Trail Ride Fundraiser Planned

There will be a benefit trail ride in Ohio on Saturday, April 5, for neuroblastoma fighter Joseph William “J.W.” Heil. There will be an auction as well as a hog roast following the trail ride. We hope there is a huge turnout for the event!

Runners Take on 5K to Help Bridgeport Child with Stage IV Cancer

This past Saturday, Pro Performance in Monongalia County sponsored a 5K, where participants were fighting for more than just a first-place finish. Instead, it was all for a child’s fight against cancer. Jack Rollins, 3, was diagnosed with Stage IV Neuroblastoma last year. Jack has become a mini-superhero to those in his community which is why many runners donned capes and superhero costumes to run the race. You can donate to Jack’s cause by visiting or by visiting his Facebook page at

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