This Week in Neuroblastoma – 1/28/13

Welcome back! Another week of uplifting NB news. From an honorary mayor to a state of the art treatment room. We’ve got it all.

Here’s this week’s links…

Kids – Why We Fight

Kevin Cardasco: Honorary Mayor of Calabasas

16 year old Kevin Cordasco has been battling neuroblastoma since he was 9 years old. He’s been through several surgeries, bone marrow transplants, chemo and radiation. He’s experienced numerous relapses and is now undergoing experimental drugs and chemo to fight the cancer. Through his battle, Kevin has had the honor of meeting the President of the United States, and now has been name honorary mayor of Calabasas for 2013. Mayor Mary Sue Maurer appointed Kevin’s title during her State of the City Address. Way to go, Kevin!

Non-Profits / Events / News

Neuroblastoma Gene Study

A multicenter study of NB has recently changed its course. While researching gene sequences scientists have found fewer recurrent gene mutations than expected. As a result, they are refocusing their energy on the way “neuroblastoma tumors evolve in response to medicine and other factors”.

Press On Fund donates MIBG Therapy Room

Patrick Chance was diagnosed with stage IV neuroblastoma when he was three years old. Over the next six years, he would spend over 200 nights in the hospital, and visit different institutions more than 400 times. He sadly died on his 9th birthday, and in his honor his parents started the Press On to CURE Childhood Cancer fund. The fund provides backing for research relating to NB and AML (acute myeloid leukemia). Recently, the Press on fund granted $200,000 to the Aflac Cancer Center for an MIBG treatment room. The room is lined with lead and will be used for children who need targeted MIBG intravenous radiation treatments. There is also a connected room for the children’s parents to stay and communicate with their kids during therapy.

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