This Week in Neuroblastoma – 1/29/14

On January 21, 2014, Justin Miller, who was recognized as “The Childhood Cancer Fighting Ninja” fought his final battle with neuroblastoma. Justin inspired many with his contagious, fearless attitude. He will be remembered for his resilient spirit, his dance moves, his smile, and his overflowing love and appreciation for life.

Here’s this week’s links…

Kids – Why We Fight

Justin Miller

Our hearts are extremely heavy as we mourn the loss of seven time neuroblastoma “ninja” and St. Baldrick’s Foundation 2012 Ambassador Kid Justin Miller passed away on January 21, 2014. Justin’s mother Lori shared the following video on Justin’s Caringbridge page which was also played at his memorial: Please keep the Miller family in your thoughts and prayers.

Non-Profits / Events / News

Classmates remember Jamie Inglis

Boxer Stevi Mennell and former classmates of Jamie Inglis came together to blow bubbles to remember Jamie on his first “angel anniversary.” Seven year old Jamie died after boldly battling neuroblastoma. If you would like to make a donation in Jamie’s memory please visit

Pals pull together to help brave little Reece

Last month, ten month old Reece Barends was diagnosed with neuroblastoma. Along with a cancer diagnosis, Ashleigh and Stuart Barends, Reece’s parents now have a growing mound of unexpected medical bills. Although both parents work, they have been forced to cut back their hours to stay by their baby’s side. ““We can assume we are looking at additional medical costs of around 150,000 rand. At the moment we are surviving on donations anyway,” says Ashleigh. To learn more about Reece and find out how you can help the Barends family, please visit their Facebook page

Two-year-old cancer survivor from Mesa readies for 1st pageant

On January 31, 2014, two-year-old Cadence Schutter will participate in her first beauty pageant in Mesa, California. Cadence has been in remission from neuroblastoma for 11 months but the fear of relapse is still a very real threat that haunts her mother Amy Schutter. But for now, Cadence is doing well and is excited to participate in this four day event. Good luck and have fun, Cadence!

£500,000 appeal launched to treat eight-year-old Keighley cancer sufferer

An appeal has been launched to raise £500,000 to fund overseas radiotherapy treatment for eight-year-old Callum Ingham. Callum has had surgery and chemotherapy to treat his neuroblastoma; however, if he should relapse, Callum’s family is already looking to head to the US or Germany for further treatment. “We learned of the potentially life-saving treatments available abroad but these can cost upwards of £500,000 – it is a huge mountain to climb but we are desperate for Callum to have access to the best available treatment, wherever it may be and at whatever cost” says Callum’s mother Kim Ager. A Just Giving website has been set-up at – InghamAppeal.

Complication keeps Middleboro boy fighting cancer from returning home

Seven-year-old neuroblastoma fighter Jesse Heikkila has unfortunately been delayed from coming home because his breathing machine malfunctioned. Friends, family, and neighbors were prepared to welcome Jesse home with balloons and signs and a police escort. Jesse was coming home on hospice. Please keep Jesse in your thoughts and prayers and hopefully he will be home soon.

Foundation set up in memory of Wirral tot hopes to raise awareness of rare illness

A charity has been set up in memory of two-year-old Amelia-Mae Davies who died after a nine month battle with neuroblastoma. Amelia-Mae’s family launched her charity on January 25th with a black tie ball. Money raised from the ball will directly help two families whose daughters are also battling neuroblastoma. For more information, visit

Coral Springs Resident Selected as Cancer Foundation Ambassador

We would like to give a huge congratulations to stage IV neuroblastoma fighter Lauren Bendesky who was named one of five St. Baldrick’s Foundation ambassadors for 2014. Lauren is a junior at Coral Glades High School and is already looking forward to her future as a pediatric oncologist, where she will devote her career both to the treatment of kids with cancer and to the research to find cures. To learn more about Lauren, please visit

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