This Week in Neuroblastoma – 3/11/13

To get you in the mood for St. Patrick’s day, we’re doing a little jig for you this week! Ok…maybe not, but we’ll tell you about some people who did. We’d also like to introduce you to Sam Shaw, and a new alliance of charities working together to improve the treatment options for kids with neuroblastoma.

Here’s this week’s links…

Kids – Why We Fight

Sam Shaw

Blogger Tony Whitmore introduced us to Sam Shaw this week, a spunky three year old who was just diagnosed with stage 4 neuroblastoma. Sam is responding well to chemo so far, but his doctors at Manchester Children’s Hospital are now recommending immunotherapy, a treatment that is not yet available in the UK. Treatment in the US is very costly, and Sam’s parents, Carl and Christine, are asking for your help to get him here. Sam’s birthday is this week…how about a little gift? 🙂

Non-Profits / Events / News

Cure Me I’m Irish!

The 6th Annual CURE ME I’M IRISH event was held this past Saturday, March 9th in Randolph, MA. There was beer tasting, live music, Irish step dancing, food, drinks and prizes! The event was put on by Beat NB, a volunteer only non-profit dedicated to helping save kids with cancer. Beat NB is run by our friend Pat Lacey, along with his son Will, who’s had “chronic neuroblastoma” for years now. The proceeds from the day will support trials of a national group of Children’s Hospitals called the NMTRC. You can check out the play by play and pictures on Beat NB’s Twitter page. Sounds like loads of fun for a great cause – wish we could have been there!!

Charities Unite to Fight Cancer

Several UK based charities have recently joined forces to help fight NB. Solving Kids’ Cancer, Neuroblastoma Alliance UK, J-A-C-K and other organizations have come together to create the International Neurbolastoma Research Collaborative (INBRC). Their goal is to produce immunotherapy options to treat, control and prevent the recurrence of neuroblastoma in children. Remember Sam? (We told you about him a few links ago.) This collaborative could help him, and other kids like him to be able to get treatment closer to home and improve their chances of survival.

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