This Week in Neuroblastoma – 5/20/13

A week’s worth of encouraging news! This is the kind of stuff we love to see (and share!).

Here’s this week’s links…

Kids – Why We Fight

Wyatt Glastetter

2-year-old Wyatt Glastetter of Jackson, MO has been battling NB since he was 18 months old. After a misdiagnoses from doctors and an inexplicably broken femur, a radiologist discovered a mass sitting on Wyatt’s adrenal gland. Wyatt’s mother, Stacy Glastetter, has been his biggest advocate. Now, the “Student Santas”, an organization that raises money all year to provide Christmas gifts for area children, is getting behind Wyatt’s cause. They are selling tickets to the St. Louis Cardinals game against the Rangers on Friday, June 21st. kfvs12.com.

Non-Profits / Events / News

Charity Dinner for Sam Shaw

We introduced you to Sham Shaw a few months ago. The resilient four-year-old is still undergoing treatment for NB and his parents are working to raise £250,000 needed for medical expenses. A charity dinner has been organized to help their efforts. There will be a three-course meal, live entertainment, raffle and silent auction. It sounds like a lot of fun! lancashiretelegraph.co.uk.

Successful Surgery for Fraja Simpson

Remember Fraja Simpson, from last week? She underwent high-risk surgery to remove her aggressive neuroblastoma tumor. Thanks to the unique way her body responded to the tumor, (the tumor pusher her organs out of the way instead of absorbing them), doctors were able to remove the tumor in one piece! She was already up and joking with nurses just hours after her surgery. She has also named her scar Sally. Fraja says that “Sally is there to protect her and will be her friend for life now.” 🙂 thenorthernecho.co.uk.

Knox Family Moves Forward

Oscar Knox was given the all-clear last month after a year of treatment to rid him of Neuroblastoma. His family was elated with the news and is doing their best to return to a “relatively normal” life. The Knox family explained on their Facebook page that, because of the 50% relapse rate with neuroblastoma, they are going to hold on to the remaining £350k in Oscar’s fund. After five years, if Oscar is still happy and healthy, the money will be released to the Neuroblastoma Children’s Cancer Alliance general fund to help other kids. u.tv.


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