Whoa – what a cool thing! When we went to the 2012 NMTRC Symposium in May, we met a cool couple named Mike and Kezia Fitzgerald. Their daughter, a little girl just as beautiful as her name – Saoirse – was taken from them in December of 2011. She had stage 4 neuroblastoma, just like Ezra did. Like us, they started a foundation to continue their child’s fight – the Fitzgerald Cancer Fund. This morning, they and many of their supporters flooded the Today Show plaza, with a big banner for their cause, and pictures of Saoirse, Ezra, and many of our other friends’ children who are battling or have battled neuroblastoma. Al Roker and Ann Curry both came out and spoke to them – Al on camera! Check out the photo above to see them on the show. Great job Mike and Kezia! I am sure Saoirse is smiling – and Ezra with her.
Here’s this week’s links – what’s going on in neuroblastoma.
Kids – Why We Fight
Meet Adam – Battling nb!
Although Adam has been battling nb for years – he was diagnosed at 5 and is now 8 – we just came across his blog this week. We thought we’d introduce you all! Adam’s Appeal
Hans Weberling – An nb Gladiator
Hans, diagnosed at age 3 with neuroblastoma, has been fighting for almost 6 years now. He’s a cool kid it seems – he’s even got his own grill. Check out his site, and get to know Hans. Hans Weberling
Oscar Knox Loves Twitter
3 yr old Oscar Knox has been fighting neuroblastoma since November of 2011. His folks just set up a Twitter for him (@Wee_Oscar) which already has over 3000 followers! Give them a follow and say hey. bbc.co.uk
Non-Profits / Events / News
Essex Policeman Honored for Raising almost £500,000
Pc Mark Edwards, a British policeman of over 26 years, received an MBE (Member of the Most Excellent Order of the British Empire) for raising nearly £500,000 for the Joining Against Cancer in Kids (J-A-C-K) charity, which helps children suffering neuroblastoma. Way to go Mark! Horncastle News
16 yr Old NB Survivor Releases Hip Hop Single
Johnny Losurdo has been no evidence of disease from neuroblastoma since he was 5. Now 16, he’s released a single (Fearless) under the name “Johnny L” to raise awareness of pediatric cancer. Sales benefit CNCF, a neuroblastoma non-profit. You can grab the song in iTunes, or at CDBaby.com! Horncastle News
Research
Advances in Neuroblastoma Research Kicks off in Ontario
The ANR is an annual get together of many of the top investigators of neuroblastoma. This year’s event just kicked off in Ontario! MarketWire.com
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