This Week in Neuroblastoma – 7/1/13

The Grimes family wants to take you out to a ballgame! A new treatment facility is opened up in Pakistan, and an awesome awareness campaign hits Facebook and Twitter.

Here’s this week’s links…

Kids – Why We Fight


Mac was diagnosed with stage four neuroblastoma in February of this year, at 16 months old. Since then his life has been a whirlwind of surgery, chemo and hospital stays.


Gabe Rooker celebrated his 3rd birthday yesterday, June 30th. Since he wasn’t able to have a party due to his health this year, he had another big goal in mind: to receive 1 million birthday cards!!

Non-Profits / Events / News

New Compounds Against Neuroblastoma Show Promise in Preclinical Tests

Two new compounds, being tested in London, are showing encouraging results in preclinical tests to treat neuroblastoma.

Pirate Ship for a Princess

A charity football match took place recently in Falmouth, raising £600 for the St. Francis School’s Pirate Ship for a Princess Appeal. The school is aiming to raise enough money to buy a boat for their playground in memory of Chloe Edwards, who died from neuroblastoma early last year. They are also holding a masquerade ball this Friday to support the cause.

MIBG Treatment in Pakistan

The very first treatment center of its kind has opened up in Sindh, Pakistan! The Dr Ziauddin Hospital has started a radionuclide treatment facility with MIBG treatment capabilities. This will be extremely beneficial for neuroblastoma patients as MIBG treatment after a tumor resection can significantly improve their chance for survival.

First Pitch Fenway

The Grimes family is thinking outside of the box to raise money for neurblastoma research. Christopher Grimes has battled neuroblastoma since the age of four. Now 7, he’s still fighting. The Grimes are raffling off the once-in-a-lifetime opportunity to throw the first pitch at Fenway Park! 100% of the proceeds will benefit the NMTRC as they work to find a cure for NB. On top of tickets to the game and throwing out the first pitch, the winner will also receive two nights at the Boston Marriott Hotel with breakfast and dinner. Check out the raffle website for all of the details!

Community Rallies Around Family

Angel Sotelo has been going through treatment for his neuroblastoma for the past three years. He was diagnosed at two years old, after going to the doctor for an eye exam. His treatments and hospital stays have put a significant financial strain on Angel’s family. Their community is coming together to donate time and materials to host fundraisers on their behalf.

Pride of Bucks Awards

An awards ceremony was held recently to honor several outstanding individuals in the Bucks community. Among the winners was Jennifer Sharp, who received the Child of Courage award. Jennifer took care of her brother, Alex while he was suffering from neuroblastoma. Alex died at five-years-old. Jennifer is now working hard to raise money for The Neuroblastoma Society in search of a cure.

Bella Babies Backs Bella

Say that five times fast! Bella Babies, a consignment store in Florida, recently held a fundraiser for local toddler, Bella Carr. Shop owner Sherri Contento organized the event, which featured a special appearance by the Florida Rays’ Sean Rodriguez, who signed autographs. Bella is three-years-old and undergoing treatment for neuroblastoma. Not only is the treatment taxing on her, but she has also had to deal with the tragic loss of her mother, Tasha Carr.

#ISF3WISHES – a Social Media Campaign

Erin Santos lost her daughter, Isabella, to neurbolastoma June 28th, 2012. A year later, she is still working to raise awareness about NB. To remember Isabella this year, Erin launched a social media campaign, urging people to submit selfies on Twitter and Facebook with their wishes for sick kids.


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