This Week in Neuroblastoma – 7/23/12

Meet some new kids – and an incredible mom who’s won an Antarctica marathon and will be running the Olympic torch in memory of her son!

Here’s this week’s links.

Kids – Why We Fight

The Ryan Edwards Appeal

Ryan Edwards has exhausted all treatment options, and is now raising money to get treatment in Germany for his neuroblastoma. A Majorette competition was held for his benefit this week and raised over £1,400!

Non-Profits / Events / News

Hookstock – Charlie Hook

6 year old Charlie Hook needs £300,000 if he relapses (an 80% chance) to come to the US for treatment. His family has arranged a one day festival called Hookstock which will raise money for his fund. This is Hull and East Riding

Yvonne Brown Carries the Torch in Son’s Honor

Yvonne and Richard Brown lost their son Jack to neuroblastoma. After winning a fundraising marathon in Antarctica (!!!) last year, this year she’ll actully be running the Olympic torch one of it’s legs, in memory of her son. Burlington Free Press


mTOR to Assist with Crizotinib Treatment

Crizotinib has been being researched for treatment in neuroblastoma. A new study shows mTOR in association with it may increase success rates. This is Hull and East Riding

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