Sorry we’re getting this out late – we’ve been crazy busy planning our big event for tomorrow. Our first annual Karaoke for Kids (Beverly Hills, 2012) will be held at the SLS Hotel in Beverly Hills, from 7-1oPM. Ticket sales are closed, but some may be available at the door.
We owe a gigantic thanks to our sponsors for this first Karaoke for Kids event – including United Talent Agency, HBO, CBS, CollegeHumor.com, FX, Cookie Casa, Ziffren Brittenham, Lewis and Maura Kay, and many others. We’re so excited!
We also had a new project launch this week – #nomorenb. Project #nomorenb dedicated to telling the stories of kids with neuroblastoma, and raising funds to support research toward a cure. See more at nomorenb.org.
Here’s this week’s links!
Kids – Why We Fight
Lamont Harris is a 4 year old who’s stage 4 neuroblastoma is now in NED. The ASK Childhood Cancer Foundation, where he was treated, is featuring him as one of their Kourageous Kids this month! vacnews.com.
Australian 8 year old Olivia Lambert died this past week of neuroblastoma. Diagnosed in 2006, her parents will carry on her memory through the Olivia Lambert Foundation – raising funds toward curing this beast. Our hearts are broken this morning as we send our thoughts and prayers to yet another family who has lost a child. canberratimes.com
Charlie Gibson Woolley
5 year old Charlie Gibson-Woolley has stage 4 neuroblastoma in St Annes. His mother is trying to raise £275,000 to send him to the States for treatment, as local options are unable to affect his cancer. itv.com
I Back Jack – Support from the Community
You may have heard of Jack Bartosz, of the I Back Jack foundation. If not – check out their site. He’s a cool kid with a ton of attitude who we’d love to hang out with. After battling neuroblastoma since 2005, there is no longer any treatment which can affect Jack’s cancer – and he is coming off treatment. Yet again – our thoughts and prayers are with a family in a spot none should ever be. Please pray for Jack. 620wtmj.com
Jamie Inglis Starts Treatment in Germany
We mentioned Jamie Inglis in an earlier TWiNB – the 7 year old’s family was trying to raise money to start treatment in Germany for him. They’ve now started! yorkpress.co.uk
Non-Profits / Events / News
Family Fun Day in Remembrance of Alfie Clark
18 month old Alfie Clark died last week after battling neuroblastoma since March of 2012. His aunt is planning a family fun day fundraiser in his honor for September 23rd in the UK. Funds raised will benefit the Neuroblastoma Alliance UK, a group dedicated to fighting nb in the UK. Our thoughts and prayers are with the Clark family. thisissomerset.co.uk
3rd Annual Ethan’s Rodeo in Memory of Ethan Weiman
After battling neuroblastoma for 2 years, Ethan Weiman died in 2009 at 4 years old. The 3rd annual Ethan’s Rodeo was held this year in Mendon, IL to raise funds toward nb research. Check out more at EthansRodeo.com connecttristates.com
The Pain of Living without Charlotte
A great editorial was published this week on Boston.com, talking about the pain of losing a child. Charlotte Rose Kelly’s mom is featured as she discusses the hurt 8 months after Charlotte has died. boston.com
Niamh’s Next Step Funds NB Conference in London
We mentioned Niamh Curry in previous TWiNB articles – he’d been fighting nb and his family was raising funds to bring him to a treatment center. Neuroblastoma is horrible – and Niamh passed before he could receive treatment. His parents are using some of the over £360,000 they raised to fund The Parent Education Neuroblastoma Conference, a conference in London where parents, non-profits, and researchers and physicians can come together to learn more about current nb research and how we can help. northantstelegraph.co.uk
MicroRNA-204 Increases Cisplatin Sensitivity
A recent study shows pairing cisplatin chemotherapy with MicroRNA-204 has a more favorable outcome than with cisplatin alone. nature.com
Research Database for NB Patients
Susan L. Cohn, MD, Professor of Pediatrics and Director of Clinical Research, Section of Pediatric Hematology/Oncology at the University of Chicago Medicine is working with the International Neuroblastoma Risk Group (INRG) to create on online publicly accessible database of certain neuroblastoma data. nature.com
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