A deeper look at the recent DFMO paper…

Neuroblastoma (NB) is the most common solid tumor found outside of the brain diagnosed in kids.  Two years of age is the average time when a child is diagnosed, and about half of these kids are diagnosed with high-risk (HRNB), which has a very poor prognosis.  And sadly, this is despite very intense treatment given to these toddlers to treat …

Beat Nb in Wicked Local Braintree

[vc_row][vc_column][vc_single_image image=”6098″ img_size=”large”][vc_column_text]It’s the start of a long-awaited weekend for Beat NB Cancer Foundation, as our annual event, Cure Me…I’m Irish, is happening tomorrow night! We’re looking forward to an evening of entertainment, St. Patrick’s Day festivities, and coming together to help KIDS beat cancer. In the midst of all the anticipation for this yearly St. Patrick’s Day fundraising celebration, we’re excited to share …

New Precision Medicine Trial Opens for 20 High-Risk Neuroblastoma Patients

Neuroblastoma is an aggressive childhood cancer that occurs in children less than 6 years of age. The first challenge is that 20 percent of children are unable to attain remission. The primary goal of this study is to evaluate the feasibility of using molecular guided therapy in combination with standard chemotherapy to increase response. The second challenge in neuroblastoma is …

Look what you did

One of the phase I clinical trials that we funded with YOUR money was just published – you can click on the title below to read it in it’s entirety. We have been funding this trial with your donations and support from the very beginning – between directing $10,000 from one of our events to Hawaii to perform the pre-clinical work …

Fuel change

Our son in June of 2008 – he was his sister in this photo’s age when he was diagnosed I first learned of Dr. Giselle Sholler back in 2007 and started to direct our funds towards her work.  In 2008 I scheduled an appointment to go see her to learn more about her program as I knew that we were …

The choices we make

The below post was written in January of 2007 on willlacey.com and highlights the choices we have to make as cancer parents to try and prevent our kids from dying. In the 1950’s and 1960’s the US government performed about 100 atomic bomb tests in the atmosphere in Nevada. Eventually these tests were moved underground but during those tests the …