2014 NMTRC Symposium in Grand Rapids, MI

Each year, the NMTRC (Neuroblastoma & Medulloblastoma Translational Research Consortium – nmtrc.org) holds a conference discussing the advances made in neuroblastoma research in the past year, and the direction their group is focusing on for the future. This is our 4th year attending (we also wrote about the 2012 and 2013 events). This year, over 120 physicians, researchers, parents, and non-profit …

Over $150,000 to Research in 2013

This past weekend we were in Grand Rapids, Michigan filming the story of an incredibly cute Irish neuroblastoma warrior named Lily Mae (look for that soon – and thank you for letting us share your story, Lily Mae and family!). Temperatures were in the single digits, and everyone was freezing. As I watched Lily Mae dance around, singing her heart …

What’s Going on in Neuroblastoma Research – 2013 NMTRC Symposium

The NMTRC (Neuroblastoma & Medulloblastoma Translational Research Consortium) is a group of 18 universities and children’s hospitals headquartered in Grand Rapids, MI which offer a nationwide network of childhood cancer clinical trials. The group is chaired by Dr Giselle Sholler. These trials are based on the research from a group of closely collaborating investigators who are linked with laboratory programs developing novel therapies …

Gasparilla Distance Classic 2013 – Nearly $9,000 Raised!

What a great weekend running for Ezra and all his fellow neuroblastoma fighters! This was our third year running the Publix Gasparilla Distance Classic, and it was so good to see everyone out there! A huge thank you to all the runners, walkers, and strollers who came out and ran with us, raising nearly $9,000 to benefit research into a …

Giving Away $100,000 in 2012

Today marks the day we’ve been without Ezra as long as we were with him. 800 days from the day he died, after living exactly 800 days. It’s a strange day for us. We thought it would be fitting to do Because of Ezra’s giving for 2012 on this day – this is only something we could have done Because …

800days

Two years ago today we lost our first-born son, Ezra David Matthews. After exactly 800 days of life, he died of neuroblastoma. Our fight is one he started for us, and we won’t stop until this cancer is cured. In Ezra’s name and memory, we are so proud today to launch our first social awareness campaign – 800 days. Each …

First Annual Karaoke for Kids in Beverly Hills Raises Six Figures!

Wow – what an evening we had last night! Our first annual Karaoke for Kids event went without a hitch at the SLS Hotel in Beverly Hills. Over 400 people showed up to enjoy the live-band karaoke, desserts sponsored by Cookie Casa, drinks, and great appetizers from the SLS Hotel food staff. Through tickets, sponsorships, raffles, donations, and auctions, we raised …

The Nick Offerman Mustachium

“My mustache and I are tickled pink to have the opportunity to help raise some funds for this great charity,” Offerman told Vulture via e-mail… Can’t make it to the auction in person? Send an email to offermanmustache@gmail.com for info on how you might yet end up owning the Nick Offerman Mustachium.” http://vulture.com