No two tumors are the same.
In fact, they vary greatly among patients with the same diagnosis. Many times, your child's solid tumor may share characteristics with other types of cancer - cancers that may have different targets and different treatments.The IN:Formation Project uses advanced genomic sequencing to reveal the mechanics, drivers, and targets in your child's unique tumor. When you participate, this information doesn't just sit in a research database, it can be actively used to find an alternative treatment option for your child, should they need it.
Instead of treating cancer by its name, treat it by its nature.
Participating in the IN:Formation Project will:
Provide you and your child's physicians the most complete tumor information with comprehensive genomic insights.
Gain access to a molecular tumor board who can synthesize powerful insights to help personalize your child's treatment.
Contribute to advancements in less-toxic, more precise, and more effective treatments for solid tumor cancers.
Moving Forward.
Speak with your child's oncologist about participation in the Beat Childhood Cancer IN:Formation Project.
Connect with the Beat Childhood Cancer Research Consortium by visiting research.beatcc.org/contact.
Frequently Asked Questions.
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My child has already had sequencing done, how is this different?
Most tumor sequencing only looks at DNA from a smaller subset of genes pulled from adult cancers.The Whole Exome/Whole Transcriptome testing through the IN:Formation Project looks at DNA and RNA in 20,000+ genes and the medical team will provide a deeper dive into options than a typical commercial report.
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Does my child need to travel to enroll?
Options for Enrollment and Intake:
1. Visit a BeatCC site offering the trial: research.beatcc.org/hospitals-trials/
2. Second Opinion Consultation: In cooperation with your home care team, as much care as possible will be coordinated, but a consultation with the Beat Childhood Cancer Research Consortium will be required. A 2nd consultation may be warranted based on patient, results, and physician review. A family will be advised after reaching out to the Beat Childhood Cancer Research Consortium team: research.beatcc.org/contact/
Biopsy tissue can be collected by your home team and will be directed according to the IN:Formation Project study guidelines. The amount of ongoing travel will depend on your home care hospital's ability to deliver treatment. Each patient’s care plan is individualized regardless of location.
Our Hope is to Make a Difference for Every Child, Everywhere.
Our Partners
