FRIDAY OCTOBER 5TH. It was raining all week, and supposed to rain the whole day. Luckily our little angel had other plans. We had been planning for this day for months now. Eager for it to come, yet still heartbreaking that we weren’t able to have Rylee with us. We knew when Rylee passed away we wanted everyone to remember …
GROW GOLD WITH US – Mykenna
The theme of the GROW GOLD WITH US awareness campaign was to show the world that the young kids battling cancer just want the chance to be kids, to do normal things that are often taken for granted — go to the zoo, cheer on their favorite team, go on vacation with their family . . . the list goes …
Camp Hazelnut 2018 (Sister Hazel’s Lyrics for Life Foundation)
We spent this weekend at the 4th annual Camp Hazelnut at Camp Crystal Lake outside Gainesville, FL. The Camp Hazelnut goal is simple: create a playful, safe, uplifting experience for kids and families navigating the overwhelming challenges of a cancer diagnosis… a place to simply get away and come together. The band members from Sister Hazel organize the event through their …
Karaoke 5k (the recap)
I reached out to Beat Nb in April of this year. It’s an organization that I had been following here and there for some time while my son Nnamdi was alive. Nnamdi passed away on October 31st of last year after battling the disease for 18 months. He was two. By April of 2018, I was physically and emotionally exhausted …
A deeper look at the recent DFMO paper…
Neuroblastoma (NB) is the most common solid tumor found outside of the brain diagnosed in kids. Two years of age is the average time when a child is diagnosed, and about half of these kids are diagnosed with high-risk (HRNB), which has a very poor prognosis. And sadly, this is despite very intense treatment given to these toddlers to treat …
GROW GOLD WITH US – Ryan
The theme of the GROW GOLD WITH US awareness campaign was to show the world that the young kids battling cancer just want the chance to be kids, to do normal things that are often taken for granted — go to the zoo, cheer on their favorite team, go on vacation with their family . . . the list goes …
Maintenance DFMO Increases Survival in High Risk Neuroblastoma
Many of you have been seeing the headline about DFMO over the past week. I’m talking about: Maintenance DFMO Increases Survival in High Risk Neuroblastoma (full paper link here). More simply put, DFMO saves lives. The numbers don’t lie – neuroblastoma is a deadly form of childhood cancer. The grueling upfront treatment process can easily take a year and involve …
September 2018 GOLDEN Recap
G9 is inspiring the world to #growGOLD far and wide to raise awareness and give optimism to every child, everywhere until better cures for cancer are found. Growing gold shows the world you want to do something about the future of survival for all kids diagnosed with cancer. We are all impacted by childhood cancer. We are the teachers of …
GROW GOLD WITH US – Elysia
The theme of the GROW GOLD WITH US awareness campaign was to show the world that the young kids battling cancer just want the chance to be kids, to do normal things that are often taken for granted — go to the zoo, cheer on their favorite team, go on vacation with their family . . . the list goes …
A Hole in One for Harlow – Evansville, WI
A Hole In One for Harlow, presented by our naming sponsor, Retirement Income Strategies, held its inaugural golf outing on September 8, 2018 at the Evansville Country Club in Evansville WI. After a week of torrential downpours and concerns over continued rain on Saturday, the skies parted and the sun shone with a light breeze while twenty teams of golfers ranging from amateurs …