This Week in Neuroblastoma – 02/03/14

Because of Ezra donated $150,000 for neuroblastoma research in 2013 and we could not have done it without all of your love, support, and of course, donations! We thank you from the bottom of our hearts!

Here’s this week’s links…

Kids – Why We Fight

With newborn son facing an uphill fight, North Platte parents try to stay positive

Kohen Wright was born November 6, 2013, with stage IV neuroblastoma. He had 5 tumors on his liver as well as a tumor in his chest. However, after having those tumors removed, more formed quickly. “When we left Omaha in November, doctors gave Kohen a 90 percent success rate,” said Kohen’s mom, Katie. “They haven’t given us a number this time. That’s probably best. I don’t want to know.” We are praying for you, Kohen!

Brave 7-year-old from Middleboro loses his battle bathed in his parent’s love

Last week we shared that Jesse Heikkila was delayed from coming home on hospice due to problems with his breathing machine. This week, we regret to inform you that Jessie has passed away. Jessie had been battling neuroblastoma and brain cancer since 2009. Heikkila family, you are in our thoughts and

Non-Profits / Events / News

Over $150,000 to Research in 2013

Because of all our amazing supporters, Because of Ezra was able to donate over $150,000 to neuroblastoma research! That is an increase of $50,000 from last year! We humbly thank you for remembering Ezra and your willingness to fight alongside us. Also, keep checking back as we will be releasing a new 800 Days video! This video will feature Lily Mae, an Irish sweetheart who is battling neuroblastoma and travels 3500 miles every few months for treatment. We had such an amazing time making this video and hanging out with Lily Mae. She reminded us so much of Ezra, especially with her love of dancing! Again, we just thank you all for your donations; you are making a huge impact on the lives of many children battling this horrible disease. God bless you all!

Brave Ella says thanks with audience’s help

7-year-old Ella Rigg was diagnosed with neuroblastoma just before Christmas this past year. Since her diagnosis, Candelighters, a childhood cancer charity has been supporting Ella. This last week, the Dewsbury Collegians raised £1,300 for Candelighters. In a message to panto audiences, Ella wrote: “The ward I am on is partly funded by a special charity called Candlelighters. I would like to say thank you by raising some money to help them continue doing their great work.”

Set-back for little Bradley as family told he can’t have radiotherapy treatment

Bradley Lowery’s doctors have said radiotherapy is not an option as he still has cancer left in his body and it could adversely affect his kidneys and spinal cord or potentially kill him. The two-year-old neuroblastoma fighter now faces a great potential for relapse. Bradley’s next step in treatment may be 6 months of immunotherapy followed by MIBG therapy. However, before immunotherapy starts, Bradley’s doctors must first identify and resolve the bleeding in his bowels. Please keep Bradley in your thoughts and

Keighley communities rally round for brave Callum

Last week we share that there had been an appeal launched to raise £500,000 to fund overseas radiotherapy treatment for eight-year-old neuroblastoma fighter Callum Ingham. Since that time, over 80 donations totaling nearly £600 have been made! “There’s a long way to go, but we’d like to thank everyone for their donations, offers of help and messages of support so far. They are hugely appreciated” says mum, Kim

Children with neuroblastoma cancer to help test radical new radiotherapy treatment

28 children suffering from neuroblastoma will take part in clinical trials at University College Hospital in London. Children as young as 18 months will be participating in this latest molecular radiotherapy trail

Millie Heaton continues her fight against neuroblastoma

Donations are being taken up to support 2-year-old neuroblastoma fighter Millie Heaton. Millie is currently waiting for her bone marrow results since having her stem cell transplant days before Christmas. Millie is scheduled to participate in an immunotherapy trial funded by Cancer Research. According to Millie’s mom, this immunotherapy trial is their last option. Please pray that this trial is successful for

Four-year-old boy made honorary member of TCU baseball team

Micah Ahern, a four-year-old boy currently battling neuroblastoma, was made an honorary member of the TCU baseball team at a press conference held in his honor. Micah also received a signed jersey and signed a letter of intent to play for TCU in 2027. Very cool!

Parents’ anguish as Leeds tot’s cancer returns

Kendal Middleton Jessop, a beautiful 3 year old who has been battling neuroblastoma since 2012, was told her cancer has relapsed. A new tumor has been found in her leg and now Kendal and her family wait for further testing and a new treatment plan which may include traveling aboard. Fundraising has already begun to cover the cost of traveling aboard. You can make a donation by visiting: or visit ‘Kendal’s fight against neuroblastoma’ on Facebook.

Benefit concert at Southgate House Revival will feature Josh Eagle, more

“A Concert for Eli,” a benefit for little Elijah who has stage 4 neuroblastoma, was held this past Friday. Josh Eagle, Shoot Out The Lights, The Mitchells, Blue Caboose, The Peace and School of Rock all performed at the concert. Sounds like they had a great time!

Millhouse Social Club, Dagenham, to host fundraising ball in memory of Hornchurch boy Mitchell Huth

A very special black tie ball will be held on Valentine’s Day in memory of 7 year old Mitchell Huth who died after bold battle with neuroblastoma. The event will include sets from three comedians, a cold and hot buffet, disco and a raffle. We hope this fundraiser is a huge success!

Obi close to winning national contest

Obi Christenson, 8, was diagnosed with neuroblastoma in 2013 after doctors found a tumor near his left kidney. Obi is competing in a national art contest and is close to winning a grand prize that would put his drawings on White Cloud facial tissue boxes. Winner will be announced sometime next week. Good luck, Obi!

Family turns tragedy into hope for others

Andrew Nelson died ten years ago from neuroblastoma. On March 3rd, Andrew’s parents, Mark and Melissa Nelson of Pocatello, will be honoring their son and promoting the advancement of cancer research through the St. Baldrick’s Foundation. On March 8, there will be a head-shaving event FUNraiser at the Sandpiper Restaurant in Pocatello from 11 a.m. to 3 p.m. in honor of Andrew. Admission is free and there will be raffles, food, drinks and music. For more information regarding the FUNraiser, Andrew and donating to childhood cancer please visit:

Blythewood residents, baseball players swing to raise money for girl with cancer

Sara Duncan, 4, was diagnosed this past September with neuroblastoma. A “Swing for Sara” fundraising event was held to benefit Sara and her family. Midlands residents, amateur baseball players and even some professional baseball players all step up to the plate to raise $5,512! Great job, Midlands community and best wishes to you, Sara!

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