This Week in Neuroblastoma – 05-08-14

Hazel Hammersley mother sums up this week’s articles and speaks for all of us when she says, “We have been absolutely humbled and surprised by the outpouring of love and support from the online community and can only hope and pray that this brings awareness to Neuroblastoma and the Childhood Cancer Community.”

Here’s this week’s links…

Kids – Why We Fight

Baby Macie Allen’s cancer tests clear, to relief of family

Macie Allen, 6 months old, was diagnosed with neuroblastoma when she was only 20 days old. Baby Macie underwent 2 months of intensive treatment and just recently Macie’s family was blessed with the news that the tumors on her liver have disappeared! Upon further testing, doctors shared that Macie’s cancer has not returned. Fundraising for Macie is continuing, should she relapse in the future and need treatment abroad. Hull man Shaun Gowan is taking part in a sponsored slim to raise funds, while Helen and family friend Jackie Beaumont are planning to take part in a sponsored sky dive later this year. We are praying for you Macie! Keep fighting, little warrior!hulldailymail.co.uk.

Five year-old Molly McNally’s Fight against Neuroblastoma

Please take 5 minutes and watch this beautiful video that details 5 year old Molly McNally’s battle against neuroblastoma. This is the painful world in which neuroblastoma families endure on a daily basis. Molly has her own Facebook page “Molly McNally Miracle Trust” and her own webpage with further details about fundraising events can be found at www.mollymcnallymiracletrust.com.independent.ie.

Girl thrown hospital pizza party by Reddit readers is now ‘cancer free’

The little 2 year old neuroblastoma fighter who captured the world’s heart by simply asking for pizza via her hospital room window is now cancer free! Hazel Hammersley was diagnosed with stage 3 neuroblastoma in April 2013. After a year of treatment, Hazel has beaten the disease, she said, writing underneath the photo: “God has blessed our daughter with a body free of the beast we call Neuroblastoma”. Such amazing news! We are so proud of you, Hazelnut!telegraph.co.uk.

Non-Profits / Events / News

Deputy police chief known for community involvement retiring in Gurnee

Gurnee Deputy Police Chief James Caldwell, known for his participation in a variety of community service endeavors, is retiring from his longtime village career. He became an active community member through helping to launch the Jon Callaghan Memorial Turkey Trot benefiting various charities and neuroblastoma research, volunteering at the Gurnee Park District’s annual Fall Fest and other projects. Jon died from neuroblastoma in 1997. Thank you Deputy Police Chief Caldwell for your commitment to protecting and serving the community as well as supporting neuroblastoma research.dailyherald.com.

Benefit set for Baby Kohen Wright

Kohen Wright, 6 months, was born with neuroblastoma. A benefit was held for baby Kohen on May 4th at the D&N Event Center. Big Al Raby of Lexington performed for the benefit and a silent auction was held to raise money to cover some of Kohen’s medical expenses. You can make a financial contribution by sending a check to: Kohen Wright, personal account, c/o First National Bank, 201 N. Dewey, North Platte, NE 69101.naplesnews.com.

Minster schoolboy Oliver Smith has fund for neuroblastoma treatment boosted by car show at Little Groves in Leysdown and Kent New Look stores

A fund has been set up to help 5 year old Oliver Smith who is battling neuroblastoma. The Oliver Smith Appeal is striving to raise £500,000 in case Oliver should relapse and need further treatment abroad. Fashion chain New Look as well as Kent stores are supporting and fundraising for the Oliver Smith Appeal. To learn more about Oliver and the Oliver Smith Appeal, please visit their Facebook page at: “Help Oliver Smith Beat Neuroblastoma.”kentonline.co.uk.

MicroRNAs define distinct human neuroblastoma cell phenotypes and regulate their differentiation and tumorigenicit

A new neuroblastoma study just came out which studied the role of MicroRNAs in neuroblastoma cells. Results of this study revealed that unsupervised hierarchical clustering of miRNA microarray data segregated neuroblastic and non-neuronal cell lines and showed that specific miRNAs define each phenotype. This study could possibly assess a patient’s survival rate and establish specific treatment protocols depending upon their MicroRNAs interaction with neuroblastoma cells. This is just more exciting and promising news!7thspace.com.

Wilkinsons reunite Saturday night for a cause

The family of James Birrell, who lost his battle to neuroblastoma, are celebrating the 13th year of the globally recognized organization The James Fund, with the reunion of country music and juno award-winning group, The Wilkinsons. The James Fund was created in honor of James and is dedicated to raising awareness about neuroblastoma and the importance of its cure for our children. The James Fund also helps to educate families, as well as facilitate research in order to generate a potential cure. You can learn more about the James Fund, including upcoming events by visiting www.jamesfund.com. intelligencer.ca.


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