This Week in Neuroblastoma – 6/25/12

Do you know of anything going on in the NB world? Maybe you run a non-profit or have a kid battling? Hit us up on our contact page – we’d love to add you to the weekly list.

Hope you guys’ Tuesday is going well. Here’s this week’s links – what’s going on in neuroblastoma.

Kids – Why We Fight

Oliver Emerson Meets Geoffrey the Giraffe for 6th Birthday

Make-a-Wish (who once informed us they couldn’t grant a wish for Ezra til he was 3 since “a 2 year old can’t make a wish”) set up a pretty fun 6th birthday for Oliver Emerson, who is battling stage 4 neuroblastoma. He was picked up in a limo, brought to the Grand Rapids Toy ‘R’ Us, and given a shopping spree with his guide as Geoffrey the giraffe!

Olivia Downie – Headed Home?

We mentioned Olivia Downie was trying to get to Mexico a couple weeks back. She made it – but devastatingly, the treatment has failed. Her parents are trying to get her home to Scotland now, but the drs in Mexico will not allow her to fly as she is too ill. This brings back painful memories of our month with Ezra in Orlando – our prayers are with you, Olivia, and your family.

Colin Sanders – 5 year old NB Survivor Runs for Hope

3 years cancer free, Colin Sanders was diagnosed with stage 4 nb at the age of 14 months. This year he’s running in the Children’s Hospital Miracle Mile – a series of events that hopes to raise over $50k for Children’s Hospital at Erlanger.

Sadie Rose Clifford Passes at Age 2

After raising £500,000 to bring her to the US for treatment, Sadie’s parent announced this week she’s passed. Doctors found more tumors here in the states, and the cancer progressed. Though we never knew her, we’ll miss her. Our thoughts and prayers are with her family.

Non-Profits / Events / News

Matthew Bittker Foundation Gives $50k to Children’s Hospital of Michigan

After finshing their Shop4aCure program, the Matthew Bittker Foundation was able to give $50,000 towards research into treatment of neuroblastoma patients. The gift was matched from Garden Fresh Salsa of Ferndale, Michigan – making a total of $100,000 given!


Enzon Finishes Phase I Trial with PEG-SN38

Results warrant a further look, as Enzon finishes a phase I trial checking for dosing sizes and viability.

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