Neuroblastoma (NB) is the most common solid tumor found outside of the brain diagnosed in kids. Two years of age is the average time when a child is diagnosed, and about half of these kids are diagnosed with high-risk (HRNB), which has a very poor prognosis. And sadly, this is despite very intense treatment given to these toddlers to treat …
Maintenance DFMO Increases Survival in High Risk Neuroblastoma
Many of you have been seeing the headline about DFMO over the past week. I’m talking about: Maintenance DFMO Increases Survival in High Risk Neuroblastoma (full paper link here). More simply put, DFMO saves lives. The numbers don’t lie – neuroblastoma is a deadly form of childhood cancer. The grueling upfront treatment process can easily take a year and involve …
Delivering on our promise
On Saturday night we’ll host our 8th annual event to help raise money to save KIDS with cancer. From our first event until today your unwavering support has allowed us to fund truly groundbreaking work. This is not hyperbole – your money has created treatment options that real children are accessing and that are alive because of it. That is …
Fuel change
Our son in June of 2008 – he was his sister in this photo’s age when he was diagnosed I first learned of Dr. Giselle Sholler back in 2007 and started to direct our funds towards her work. In 2008 I scheduled an appointment to go see her to learn more about her program as I knew that we were …
The choices we make
The below post was written in January of 2007 on willlacey.com and highlights the choices we have to make as cancer parents to try and prevent our kids from dying. In the 1950’s and 1960’s the US government performed about 100 atomic bomb tests in the atmosphere in Nevada. Eventually these tests were moved underground but during those tests the …
Change the world
Falmouth 2014
Our third year at Falmouth is in the books and what a day it was! As of this writing our team of over 115 runners have eclipsed the $165,000 mark with more money still coming in. THANK YOU RUNNERS AND DONORS! The race was incredible with our supporters cheering on the runners with a mile plus to go in the …
Strike the black key
The below post was originally posted HERE in March 30 2012. It illustrates why your support is so important – and how groundbreaking work will only take place in our current broken system if we make the choice to fund it ourselves. This is why you are all so awesome! ———– In 1930 a graduate student at Harvard University created …
Falmouth 2014 – Why Beat NB?
There are countless non-profits out there doing all sorts of wonderful things to support causes that are near and dear to their hearts – and many of yours. In the childhood cancer space alone there are innumerable charities dedicated to helping kids or families with cancer. So why Beat NB? I can honestly say that you would be hard pressed to find …
5th NMTRC symposium
Presenting $150,000 of YOUR dollars to the extraordinary Dr. Giselle Sholler. This year I attended the NMTRC symposium hosted by Helen DeVos Children’s Hospital in Grand Rapids Michigan from April 27th to the 29th. It was the 5th time it is has been held and I have been fortunate to attend each one and I can promise you that great …