This week we say goodbye to another hero and strive to keep his mantra alive – “Courage, Strength, Believe.” Here’s this week’s links… Kids – Why We Fight Kevin Cordasco Kevin Cordasco, 16, has sadly lost his battle with neuroblastoma. You may remember us telling you about Kevin a few months back, when he was named the honorary mayor of …
Thank you for an incredible event
Check Presentation Saturday Night to Dr. Giselle Sholler – chair of the NMTRC We kicked off our event on Saturday night – just before the guests arrived – by presenting Dr. Sholler with $100,000 of YOUR money so that she can continue to helps save KIDS with cancer! The NMTRC continues to open ground breaking studies and your are truly …
This Week in Neuroblastoma – 3/11/13
To get you in the mood for St. Patrick’s day, we’re doing a little jig for you this week! Ok…maybe not, but we’ll tell you about some people who did. We’d also like to introduce you to Sam Shaw, and a new alliance of charities working together to improve the treatment options for kids with neuroblastoma. Here’s this week’s links… …
Bring a Friend – Tell your Friend #CUREME
In just five days we’ll once again be hosting “Cure Me I’m Irish” our largest annual fundraiser. This is our SIXTH annual event and I once again find myself in the final wrap up period as we prepare for 1,000 folks to come out and Celebrate with a Purpose! Every year I continue to be amazed at the extraordinary group …
This Week in Neuroblastoma – 2/25/13
So good to speak with you again… although our legs are a little sore from running this weekend! Here’s this week’s links… Non-Profits / Events / News Vaccine Induces Complete Remission of Relapsed Neuroblastoma A 6 year old boy with recurrent NB is now in full remission one year after his last experimental treatment. The boy underwent a study of …
Gasparilla Distance Classic 2013 – Nearly $9,000 Raised!
What a great weekend running for Ezra and all his fellow neuroblastoma fighters! This was our third year running the Publix Gasparilla Distance Classic, and it was so good to see everyone out there! A huge thank you to all the runners, walkers, and strollers who came out and ran with us, raising nearly $9,000 to benefit research into a …
This Week in Neuroblastoma – 2/11/13
This week we’re introducing you to the Amazing Austin, remembering a sweet little princess named Gabby and raising awareness in pajamas! Here’s this week’s links… Kids – Why We Fight Austin In June 2012, at sixteen months old, Austin was diagnosed with stage 4 neuroblastoma. His parents had taken him into the emergency room after he exhibited some fussy behavior, …
Guest Post: 9 year old Ashley
Hello! My name is Ashley Burnette. I am 9 years old and I live in Raleigh, NC. I live with my mom, Nicole Burnette, my dad, Hunter Burnette and my older sister, Olivia Burnette. I play two sports right now…..I run with Girls on The Run and I’m learning how to play basketball. Some things I like are reading and …
CURE ME I’M IRISH
2016 Event Here The 6th annual CURE ME I’M IRISH event will soon be upon us! We wanted to take this opportunity to update you on the event line up. Beer Tastings After last year when we had 10 brewers on hand it became apparent that FIVE is our magic number. This year Backlash will again come back to pour …
Any improvement would be better
When my toddler was undergoing the most intense doses of chemotherapy you can give a human being – and hopefully NOT kill them – we used to have our dog stay with my parents until the worst of the vomiting went away. Why? Because as dogs are prone to eat everything my fear was that our dog would attempt to ‘clean up’ …