the hope is, this pill is stopping Lily-Mae’s cancer from coming back
On Tuesday we watched a scientist tear up at a dinner party. Around twenty years ago, Dr Andre Bachmann started working with a drug called DFMO in Hawaii. In the early 2000s, he recognized the fact DFMO inhibited something called ODC could make it a good drug to treat neuroblastoma, and started working on that, in a lab. In 2008, …
Ezra Matthews
Ezra was diagnosed with stage 4 neuroblastoma on October 4th, 2009 at the age of 13 months. The day before Ezra’s 2nd birthday the Matthews family discovered he’d relapsed already, less than 4 months out of stem cell transplant. This meant his neuroblastoma was very aggressive, and there was no current cure. They were slated to start a trial using a …
Will Lacey
Ezra was diagnosed with stage 4 neuroblastoma on October 4th, 2009 at the age of 13 months. The day before Ezra’s 2nd birthday the Matthews family discovered he’d relapsed already, less than 4 months out of stem cell transplant. This meant his neuroblastoma was very aggressive, and there was no current cure. They were slated to start a trial using a …
John Gegen
On the 1st of June 2012, life as we knew it ended when our beautiful daughter, Lily-Mae was diagnosed with Stage IV neuroblastoma just 6 weeks after her 4th birthday. Lily-Mae hadn’t been particularly ill, she’d had a pain in her back for about two weeks, but it wasn’t a persistent pain and she went to school & her ballet …
Brighthouse Networks Enterprise Solutions 1st ever Charity Classic brings in over $86,000 to support childhood cancer research!
This past Tuesday was the first ever Charity Classic by Bright House Networks Enterprise Solutions (BHNES), benefitting Because of Ezra – to the tune of $86,000+. It was a beautiful day at Saddlebrook Resort north of Tampa (check out more photos on the Because of Ezra Facebook page), with a dozen companies sponsoring including BHNES and Platinum Sponsor Cisco. The teams played 18 …
Because of Ezra: Bay area couple uses loss to help others
Because of Ezra: Bay area couple uses loss to help others Posted: Sep 15, 2014 3:03 PM EDT Updated: Oct 13, 2014 4:16 PM EDT By Stacie Schaible TAMPA, FL (WFLA) – The loss of a child leaves wounds so deep they never really heal. Robyn Matthews says “you don’t realize how many people ask you how many children you …
Karaoke for the Kure in Vegas – a ton of fun!
2014 was our first year in Las Vegas for Karaoke for the Kure! We had a blast throughout the evening, with 150 people in attendance and some amazing singers and supporters enjoying the perfect weather. As our first outdoors Karaoke for the Kure event, Container Park (located in the Downtown Project, brainchild of Zappo’s CEO Tony Hsieh) was incredible. Their team contributed to …
Karaoke for the Kure Raises Over $60k in Tampa
We stopped by the Orpheum today to grab some of the things we left from last night’s third annual Karaoke for the Kure: Solid Gold, and their crew were setting up for a concert. The floors and walls were still covered in gold glitter. Around 350 of our incredible Tampa supporters showed up yesterday decked in gold to celebrate Ezra’s life (Karaoke …