On the 1st of June 2012, life as we knew it ended when our beautiful daughter, Lily-Mae was diagnosed with Stage IV neuroblastoma just 6 weeks after her 4th birthday. Lily-Mae hadn’t been particularly ill, she’d had a pain in her back for about two weeks, but it wasn’t a persistent pain and she went to school & her ballet …
The choices we make
The below post was written in January of 2007 on willlacey.com and highlights the choices we have to make as cancer parents to try and prevent our kids from dying. In the 1950’s and 1960’s the US government performed about 100 atomic bomb tests in the atmosphere in Nevada. Eventually these tests were moved underground but during those tests the …
Brighthouse Networks Enterprise Solutions 1st ever Charity Classic brings in over $86,000 to support childhood cancer research!
This past Tuesday was the first ever Charity Classic by Bright House Networks Enterprise Solutions (BHNES), benefitting Because of Ezra – to the tune of $86,000+. It was a beautiful day at Saddlebrook Resort north of Tampa (check out more photos on the Because of Ezra Facebook page), with a dozen companies sponsoring including BHNES and Platinum Sponsor Cisco. The teams played 18 …
Because of Ezra: Bay area couple uses loss to help others
Because of Ezra: Bay area couple uses loss to help others Posted: Sep 15, 2014 3:03 PM EDT Updated: Oct 13, 2014 4:16 PM EDT By Stacie Schaible TAMPA, FL (WFLA) – The loss of a child leaves wounds so deep they never really heal. Robyn Matthews says “you don’t realize how many people ask you how many children you …
Karaoke for the Kure in Vegas – a ton of fun!
2014 was our first year in Las Vegas for Karaoke for the Kure! We had a blast throughout the evening, with 150 people in attendance and some amazing singers and supporters enjoying the perfect weather. As our first outdoors Karaoke for the Kure event, Container Park (located in the Downtown Project, brainchild of Zappo’s CEO Tony Hsieh) was incredible. Their team contributed to …
Aaron Rodgers Surprises Annie
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Karaoke for the Kure Raises Over $60k in Tampa
We stopped by the Orpheum today to grab some of the things we left from last night’s third annual Karaoke for the Kure: Solid Gold, and their crew were setting up for a concert. The floors and walls were still covered in gold glitter. Around 350 of our incredible Tampa supporters showed up yesterday decked in gold to celebrate Ezra’s life (Karaoke …
Karaoke for the Kure on the Jamie Meloni Real Estate Radio Show
[vc_row][vc_column][vc_column_text] Jamie Meloni and the crew at the Jamie Meloni Real Estate Radio Show were gracious to host us and discuss Karaoke for the Kure 2014 in Tampa.[/vc_column_text][vc_video link=”https://www.youtube.com/watch?v=8d_Zt3mN8p4″][/vc_column][/vc_row]
Karaoke event to fund pediatric cancer fight
Karaoke event to fund pediatric cancer fight Kathryn Bursch, WTSP 8:59 a.m. EDT September 8, 2014 St. Petersburg, Florida – Sadness for a Tampa couple has turned to song. But their tune is a fight song — a fight against cancer. For Kyle and Robyn Matthews, both their joy and sorrow spring from their son Ezra. The toddler died just …