Hope is a huge part of fighting neuroblastoma. Mark Dungan shared the beautiful story of his daughter Sydney, who was diagnosed 10 years ago yesterday, and is now a brilliant, happy 12 year old young lady. Here’s her story… “On June 21, 2003, almost at this very moment, Sydney was diagnosed with NMYC amp. stage 4 NB. What followed that was …
This Week in Neuroblastoma – 6/17/13
Massive amounts of news this week! We have advancement in treatments, awards for research and some really cool kids for you to meet. Here’s this week’s links… Kids – Why We Fight Henry Hallam Henry is proving to be quite the little fighter. The three-year-old, who is receiving treatment for NB, came back from a terrifying turn last week. He …
This Week in Neuroblastoma – 6/10/13
This week we’re struck with the ugly reality of relapses and secondary cancers. We also learn about new strategies that are being formed to help make treatments for NB less toxic and more effective. Here’s this week’s links… Kids – Why We Fight Lauryn Feltham Lauryn Feltham was diagnosed with neuroblastoma when she was four, after complaining of a sore …
my sons are not gone; they’re just dead
in our home there is a room which is for “storage” it used to have a crib on the door there are still hand-Crayoned signs “Ezra God loves you” missing the comma which always made us laugh penned from children in a school class who I hope will remember the day my son came to visit with a smile so …
Making a difference… Because of Ezra
Sometimes we get communication from people which is so powerful we just have to share it. A woman named Stephanie sent us the picture above, of her stethoscope for nursing school. It has Because of Ezra engraved on it, as well as a cross and her initials. Stephanie said this in her message to us: I received my stethoscope in …
This Week in Neuroblastoma – 6/3/13
This month brings another heart breaking good-bye to a neuroblastoma fighter. We also learn of some really cool developments in NB research and get some much needed motivation from a few awesome people. Here’s this week’s links… Kids – Why We Fight Ryan Wright We’re so sad to say that 22-month-old Ryan Wright has passed away after battling neuroblastoma for …
Save the Date – Karaoke for the Kure!
We are back, better than ever, with live-band karaoke at amazing venues from coast to coast. Ever dream of being a rock star? Here’s your chance to share the same stages graced by music legends. If singing’s not your thing, what a great opportunity to bid on some actors, writers, executives, housewives, politicians, or musicians to sing any song of …
Guest Post: Beat NB runner Peter Fitzgerald
Donate to Peter’s Running Page Working at Children’s hospital overnights, I sometimes forget where I am. Behind a curtain of poly it is just like any other construction site. But when I go on break, and walk out from behind the poly, I see the children. The children who have hurt themselves playing sports, riding bikes, playing man hunt. They …
Forward
“I don’t know how do you do it?” There are innumerable people who have had a child diagnosed with cancer. And in the maelstrom that follows a diagnosis and the subsequent hell on earth that these families endure that is the one statement that inevitably follows. There are different ways to answer it but it really all comes back to …
This Week in Neuroblastoma – 5/20/13
A week’s worth of encouraging news! This is the kind of stuff we love to see (and share!). Here’s this week’s links… Kids – Why We Fight Wyatt Glastetter 2-year-old Wyatt Glastetter of Jackson, MO has been battling NB since he was 18 months old. After a misdiagnoses from doctors and an inexplicably broken femur, a radiologist discovered a mass …