“Cancer affects everyone, and it’s up to all of us to support the important research that can one day make a much sought-after cure a reality”-Actress Angie Harmon. Here’s this week’s links… Non-Profits / Events / News Almost £2,000 raised by Lowson United I wonder if there was a lot of, ”Ahhh! Kelly Clarkson!” yelling going on during Lowson United’s …
This Week in Neuroblastoma – 12/9/13
The weather outside may be frightful but we have some great stories for you this week, including upcoming benefit concerts, registration for the 2014 NMTRC Symposium, a humbling game of cricket, and a promising study that may allow for more accurate treatment for neuroblastoma! Grab some hot cocoa and enjoy! Here’s this week’s links… Non-Profits / Events / News Concerts …
This Week in Neuroblastoma – 12/2/13
Hope you all had a wonderful Thanksgiving! Don’t let all that turkey and stuffing slow you down in the fight against neuroblastoma! Here are some heart-warming fundraising stories, as well as a special visit from Santa that will pick you up and keep you motivated this holiday season. Here’s this week’s links… Non-Profits / Events / News D. 202 cheerleaders …
“I was changed because of Ezra.”
We received this email the other day, and were moved to tears (good ones!) by it. Thanks, Meshelle, for letting Ezra’s story be a part of yours. It means so much. “Honestly, I can’t remember how I heard about Ezra’s story, but I can tell you exactly where I was… that is forever engraved into my consciousness. I was at …
This Week in Neuroblastoma – 11/7/13
A new place with lead-lined walls, a beerfest raising money for charity, some very cool teenagers and a couple of tough little fighters to introduce you to – yep, a busy week. Here’s this week’s links… Kids – Why We Fight Clodagh Daly Clodagh turned one on Halloween this year. Eleven months out of the twelve that she’s been alive, …
Meet the Piano Guys and Benefit Because of Ezra!
Our friends at The Piano Guys (thanks Al!) have graciously given us tickets to auction off for this Friday’s sold out show in Tampa at the David A. Straz, Jr. Center for the Performing Arts! You’ll also get VIP passes for a meet and greet before the show with The Piano Guys! We’ve got 4 tickets (and passes) up for auction at …
This Week in Neuroblastoma – 10/22/13
Aaaaand we’re back. Did you miss us? We’ve got some catching up to do. Here’s this week’s links… Kids – Why We Fight Henry Allen 4 year old Henry Allen has become too sick for more treatment. The little fighter says he doesn’t want any more medicine to battle his neuroblastoma, and his parents now want to take him home …
Karaoke for the Kure is Welcomed Home in Tampa
Tampa’s first year seeing Because of Ezra’s Karaoke for the Kure event was a perfect evening! Held on what would have been Ezra’s fifth birthday, over 200 people filled the Ritz’ main room in Ybor City, Tampa. The karaoke queue (backed by Seattle band Rockaraoke) was full the entire 3 hours – with enough people still on the list afterwards …
#dosomething
7 years ago Today my newly minted 9 year old started 4th grade. I never gave up hope – an indefensible hope – that he could stay alive this long. However, experiencing it and hoping it will happen are two very different things. I know plenty of parents who shared that same hope whose children are dead and for whom …
Moving the bell curve
Five years ago this week seven year old Max was taken from his family by cancer the same week my own son with cancer had just turned 4. I had an opportunity to get to know Max’s parents because both of our children where chasing down treatment options for our kids – kids that our own hospitals had …