We received this email the other day, and were moved to tears (good ones!) by it. Thanks, Meshelle, for letting Ezra’s story be a part of yours. It means so much. “Honestly, I can’t remember how I heard about Ezra’s story, but I can tell you exactly where I was… that is forever engraved into my consciousness. I was at …
This Week in Neuroblastoma – 11/7/13
A new place with lead-lined walls, a beerfest raising money for charity, some very cool teenagers and a couple of tough little fighters to introduce you to – yep, a busy week. Here’s this week’s links… Kids – Why We Fight Clodagh Daly Clodagh turned one on Halloween this year. Eleven months out of the twelve that she’s been alive, …
Meet the Piano Guys and Benefit Because of Ezra!
Our friends at The Piano Guys (thanks Al!) have graciously given us tickets to auction off for this Friday’s sold out show in Tampa at the David A. Straz, Jr. Center for the Performing Arts! You’ll also get VIP passes for a meet and greet before the show with The Piano Guys! We’ve got 4 tickets (and passes) up for auction at …
This Week in Neuroblastoma – 10/22/13
Aaaaand we’re back. Did you miss us? We’ve got some catching up to do. Here’s this week’s links… Kids – Why We Fight Henry Allen 4 year old Henry Allen has become too sick for more treatment. The little fighter says he doesn’t want any more medicine to battle his neuroblastoma, and his parents now want to take him home …
Karaoke for the Kure is Welcomed Home in Tampa
Tampa’s first year seeing Because of Ezra’s Karaoke for the Kure event was a perfect evening! Held on what would have been Ezra’s fifth birthday, over 200 people filled the Ritz’ main room in Ybor City, Tampa. The karaoke queue (backed by Seattle band Rockaraoke) was full the entire 3 hours – with enough people still on the list afterwards …
#dosomething
7 years ago Today my newly minted 9 year old started 4th grade. I never gave up hope – an indefensible hope – that he could stay alive this long. However, experiencing it and hoping it will happen are two very different things. I know plenty of parents who shared that same hope whose children are dead and for whom …
Moving the bell curve
Five years ago this week seven year old Max was taken from his family by cancer the same week my own son with cancer had just turned 4. I had an opportunity to get to know Max’s parents because both of our children where chasing down treatment options for our kids – kids that our own hospitals had …
E is for Ezra 2 – An iPhone Theme for a Cause (Again!)
Aside from founding and running Because of Ezra with his wife and Ezra’s mom Robyn Matthews, Ezra’s dad Kyle is the founder of an iPhone customizing community called ModMyi.com. The second largest iPhone-related Apple community online (second only to Apple themselves!), ModMyi is a lively group of people who love customizing (modding) their devices to make them just how the …
Because of Ezra Founders Robyn and Kyle Matthews on the Radio
Tampa people! Because of Ezra founders Kyle and Robyn Matthews will be on Clear Channel radio stations this weekend in the Tampa Bay area, doing a 30 minute spot with Corey Dylan and Dr Don Eslin. We’ll discuss Ezra, who we are and why we do what we do, and our upcoming Karaoke for the Kure Tampa event. You can hear it the following stations and …
2nd Annual Karaoke for the Kure in West Hollywood Raises Six Figures Again!
Wow. That’s the first thing that comes to mind to describe Because of Ezra’s second annual Karaoke for the Kure event at The Troubadour in West Hollywood this Monday. Hundreds of our wonderful supporters came out and rocked a stage steeped in rock and roll legend. Seattle band Rockaraoke played live backup for the dauntless karaoke performers, laying down everything from TLC’s …