This Week in Neuroblastoma – 12/16/13

“Cancer affects everyone, and it’s up to all of us to support the important research that can one day make a much sought-after cure a reality”-Actress Angie Harmon.

Here’s this week’s links…

Non-Profits / Events / News

Almost £2,000 raised by Lowson United

I wonder if there was a lot of, ”Ahhh! Kelly Clarkson!” yelling going on during Lowson United’s sponsored leg waxing fundraiser for Lucy Wright? Lucy is a 5 year old stage IV neuroblastoma fighter who was diagnosed back in January of this year. Great job Lowson United for showing your support and waxing your legs for an amazing cause!

Golden Square security staff raised £1,300 in Movember

From no hair to fu manchu, the security staff at the Golden Square have raised £1,300 for the 2013 Movember campaign. The Golden Square security staff put down their razors to raise money for 22 month old, stage IV neuroblastoma fighter Stephen William Erangey, the nephew of one of the staff members. “We’re overwhelmed at how much has been raised, we’ve smashed the £500 target! I just want to say a big thank you to everyone who took part and those who have supported us” said Stephen’s uncle Ryan

Cohen Children’s Medical Center receives research grant

The Feinstein Institute for Medical Research on Thursday announced that the Cohen Children’s Medical Center has received a $50,000 grant to develop a new MIBG therapy program to treat high-risk forms of neuroblastoma. The St. Baldrick’s Foundation provided the grant, one of 39 received totaling $2.2million for pediatric cancer research. “With support from the St. Baldrick’s Foundation, the Cohen Children’s Medical Center of New York is working to become one of the few institutions across the country with the ability to deliver this novel treatment. Through this endeavor, Cohen Children’s will be able to offer access to more trials and treatments for children with high-risk neuroblastoma,” said Dr. Jonathan D. Fish, assistant professor of pediatrics at Hofstra North Shore-LIJ School of Medicine and physician at the children’s hospital. “This undertaking would not have been possible without the support of the St. Baldrick’s Foundation and the donors that make their incredible work possible, and we are incredibly thankful to them.”

Sydney River boy wishes for building block bliss

After 500 days of neuroblastoma cancer treatment one thing has kept 7 year old Brian Sutherland-MacKay’s spirits up…LEGO! “Lego was fundamental,” said Brian’s mother, Elaine Sutherland. “Even with radiation, he stayed awake, we went and bought him a Lego and he built a Lego. Even in Toronto with the stem cell, he did Lego every single day.” Brian successfully completed treatment in 2012 and has been doing well ever since. Earlier this year, Brian was selected to make a wish from the Make-a-Wish Foundation; logically, Brian wished to go on a weeklong trip to Legoland in Orlando, Florida. Have fun at Legoland, Brian and best wishes to you!

Cancer-stricken toddler Kian Musgrove returns home for first time in months

For 48 hours, 19 month old neuroblastoma fighter Kian Musgrove got to return home for the first time in nearly 2 months. Kian was first diagnosed in September after he became ill on vacation with his family in Turkey. Since his diagnosis, Kian’s family has launched a £500,000 fundraising drive as they look to raise cash that could send him to the US for pioneering treatment if he relapses. Kian will also start his fifth round of high-dose chemotherapy next week and will find out if he has cancer in his bone marrow. Please keep Kian in your thoughts and prayers. Anyone wanting to donate can go to and for more information search ‘Caring for Kian’ on

Big-hearted Mirror readers raise thousands to help terminally ill dad’s fight to save his daughter

Tom Attwater has a terminal brain tumor with and reached out to the Mirror Newspaper in the Uk about a fundraiser he started, not for himself but for his 4 year old daughter Kelli who has relapsed neuroblastoma. In a single day, Mirror readers raised £10,000 for Kelli; Tom’s goal is to raise £350,000-a lofty number but a number Tom is determined to reach. The family plans to use the funds for pioneer treatment available in the US and Germany if Kelli should relapse again. “Thank you so much to everyone who is helping – especially at this expensive time of year when money is tight for everyone… Nothing can save me, but I’ll work until my last breath to ensure my little girl is saved,” expressed Tom. If you would like to donate to Kelli’s potentially life-saving treatment, please visit

You can sign up to receive these weekly articles in your email. Sign up below…

Mind if we hang out
in your inbox?

We only email once or twice a month, always relevant to how we're working to beat neuroblastoma and other childhood cancers.

Thank you for subscribing!

Something went wrong.