We missed you last week, so we’re doubling up on articles to make up for it. We are crushed to say good-bye to Oliver Zane Emerson this week. Others are raising money to continue their fights. A few football stars are also doing some great things to help spread awareness. Here’s this week’s links… Kids – Why We Fight Charlie …
There is no normal
This year was my 4th NMTRC conference and what struck me as I prepared to depart for Florida was just how much I was looking forward to it. Exactly what about a two day relapsed neuroblastoma conference is so engrossing that I actually enjoy myself? Is it taking three days off from work? Is it travelling to Orlando Florida? Is …
Runner Spotlight: Peter Fitzgerald
My name is Peter Fitzgerald, I moved to Braintree about 5 years ago from Dorchester. My wife Lisa and I have 3 children Caleigh 10, Maeve 8, and Gavin 6. I am 43 years young, and I am the furthest thing from a runner that I have ever seen. When I first moved here to Braintree, I met some wonderful …
What’s Going on in Neuroblastoma Research – 2013 NMTRC Symposium
The NMTRC (Neuroblastoma & Medulloblastoma Translational Research Consortium) is a group of 18 universities and children’s hospitals headquartered in Grand Rapids, MI which offer a nationwide network of childhood cancer clinical trials. The group is chaired by Dr Giselle Sholler. These trials are based on the research from a group of closely collaborating investigators who are linked with laboratory programs developing novel therapies …
This Week in Neuroblastoma – 4/29/13
Congratulations to Oscar Knox are in order this week; he has kicked cancer’s butt! We’re also learning about some big changes and advancements in NB treatment. Here’s this week’s links… Kids – Why We Fight Ryan Wright 18-month-old Ryan Wright is fighting for his life. Suffering from a neuroblatoma relapse, doctors have given Ryan only weeks to live, and his …
Extraordinary people
This weekend the 3rd grade classmate of a neuroblastoma child – who has been battling NB for over 8 years – decided to have a lemonade stand. He donated the money from his lemonade stand to BEAT NB to help his friend. The letter below was received earlier this year and I wanted to share it with you all. Every …
This Week in Neuroblastoma – 4/22/13
This week we’re introducing you to some real life superheroes. (No really, they wear capes and everything!) Here’s this week’s links… Kids – Why We Fight Ava Jorgensen Last November, five-year-old Ava Jorgensen started preschool. The very next day, her life changed forever. Ava had been suffering from silent seizures, spacing out and biting. Her school noticed the odd behavior …
This Week in Neuroblastoma – 4/15/13
Some crazy stuff going on this week – meeting two new kids, and seeing a pajama walk and… a man’s chest getting waxed for charity?!?! Here’s this week’s links… Kids – Why We Fight Braiden Prescott Three-year-old Braiden is undergoing his second round of chemo after a few minor set backs. His parents delayed his treatment twice, since Braiden was …
Malia Jusczyk
On April 1, 2011, it was official: 2 ½-year-old Malia Dakota Jusczyk’s carefree life of Disney World and pony rides, soccer practice and swimming pools, came to a grinding halt. A CT scan revealed that Malia’s recent “tummy aches” were caused by a large tumor lodged in her abdomen. The solid mass wrapped around major blood vessels and pushed against …
This Week in Neuroblastoma – 4/1/12
There are some great fundraisers happening in this week’s news. We love to hear about people making a difference! Here’s this week’s links… Kids – Why We Fight Johnny Losurdo Johnny Losurdo was 4 weeks old when he was diagnosed with stage IV neuroblastoma. We could tell you his story, be he tells it much better! His essay won first …