We are now just 40 days away from our 6th annual CURE ME I’M IRISH event! Have you gotten your tickets yet? The tickets are currently being sold for the discounted price of just $75 and will jump to $90 once the sale is over. Your event ticket grants you admission the event and includes complimentary food, beer and wine …
This Week in Neuroblastoma – 1/28/13
Welcome back! Another week of uplifting NB news. From an honorary mayor to a state of the art treatment room. We’ve got it all. Here’s this week’s links… Kids – Why We Fight Kevin Cardasco: Honorary Mayor of Calabasas 16 year old Kevin Cordasco has been battling neuroblastoma since he was 9 years old. He’s been through several surgeries, bone …
This Week in Neuroblastoma – 1/21/13
We’re back at it! More news on the NB front. Here’s this week’s links… Kids – Why We Fight Jamie Inglis We were crushed to hear seven-year-old Jamie Inglis died this week. Jamie was diagnosed at three years old, and beat neuroblastoma once. He was in remission for 18 months before relapsing. He was undergoing treatment for his relapse in …
Attention Runners / Walkers!
Tampa runners, joggers, lovers of the pavement, and haters of cancer – come run the Gasparilla Distance Classic with us! EVERYONE can do this – runs range from a 5K jog, strollers jog, or run… all the way up to a half marathon. We’re doing it a little different this year – check the link below to create your own …
Giving Away $100,000 in 2012
Today marks the day we’ve been without Ezra as long as we were with him. 800 days from the day he died, after living exactly 800 days. It’s a strange day for us. We thought it would be fitting to do Because of Ezra’s giving for 2012 on this day – this is only something we could have done Because …
2013 – a kiss from Ezra
For New Years Eve, Robyn and I went out with some close friends of ours to the Tampa Convention Center, where there would be a “ball drop”, fireworks, and some music. 2012 had been a hard year – walking the line between grief that burns so icily deep it pauses your very will to move forward, and the thaw of …
This Week in Neuroblastoma – 1/7/13
We hope 2013 is treating you all right so far! There’s been a little lack in new NB news lately. We’re thinking that this means great things are in the works. In the mean time, if you’re interested in helpings us generate some news of our own, check out the different ways you can help us make things happen! Here’s …
Hey Internet – thanks for granting Ezra’s mom’s birthday wish
It was pretty cool to see Robyn’s birthday wish (to sell 800 bracelets by January 16th – 800 days after Ezra died) granted by the internet in a single day!
This Week in Neuroblastoma – 12/31/12
Happy New Year, everyone! Thank you for making it a great year for us. We are looking forward to more big things in 2013. Here’s this week’s links… Why We Fight Dana Rothschild Dana Rothschild beat neuroblastoma when she was 4 years old. Although happy to be alive, her life has been full of medical problems. Most recently, at 45, …
This Week in Neuroblastoma – 12/24/12
Merry Christmas Eve! We hope that you all enjoy your time with family and friends. And to those of you who have lost a loved one this year, especially to cancer, our hearts go out to you. Here’s this week’s links… Kids – Why We Fight Nicholas Pedone 7 year old Nicholas Pedone was diagnosed with stage 3 neuroblastoma just …