Buy Ronan, by Taylor Swift, on iTunes. All proceeds go to cancer-related charities. Uhm. Taylor Swift wrote a song about our friend’s kid – Ronan. Then she played it on every single television station in the USA at the same time. Ronan was murdered by neuroblastoma, as his fiery momma Maya puts it, shortly after Ezra was. We wish they …
This Week in Neuroblastoma – 9/4/12
Ezra’s birthday was last week (Aug 31) – he’d have been 4 years old. We miss him. This week we are also furiously saying goodbye to 2 more kids. Some good research is happening as well. Here’s this week’s links… Kids – Why We Fight Jack Bartosz Crushingly, last week Jack Bartosz died from his stage 4 neuroblastoma. He had …
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This Week in Neuroblastoma – 8/27/12
Ezra’s birthday is this Friday (Aug 31) – he’d have been 4 years old. We miss him. Here’s this week’s links… Kids – Why We Fight Sarah Smith Sarah Smith, a stage 4 neuroblastoma survivor, recently celebrated her 17th birthday! Here’s to many more stories like Sarah’s… smithellaneous.com. Non-Profits / Events / News Neuroblastoma Treatment Tough to Find in the …
This Week in Neuroblastoma – 8/20/12
A busy week this week! Sorry we’re getting this out late – we’ve been crazy busy planning our big event for tomorrow. Our first annual Karaoke for Kids (Beverly Hills, 2012) will be held at the SLS Hotel in Beverly Hills, from 7-1oPM. Ticket sales are closed, but some may be available at the door. We owe a gigantic thanks …
This Week in Neuroblastoma – 8/13/12
It’s summer – tons of events going on! We’re also meeting two kids going to Germany for treatment. Here’s this week’s links. Kids – Why We Fight Ryan Wright Needs to get to Germany Ryan Wright, who just turned 1, was diagnosed with stage 4 neuroblastoma in February. Though he’s seen some response to chemo, the cancer has left him …
This Week in Neuroblastoma – 8/6/12
A ton of folks doing fundraisers this week! Here’s this week’s links. Kids – Why We Fight Talia – “Makeup is my Wig” Meet Talia – she’s got neuroblastoma, she’s 13, and she says makeup is her wig. This girl is awesome, and has over 8 million views total from her 150+ videos on YouTube, where she vlogs about going …
This Week in Neuroblastoma – 7/30/12
Today we meet 5 new kids, and say goodbye to one. This is every week my friends – it’s why we fight, and still need your help. Here’s this week’s links. Kids – Why We Fight Lily Anderson 11 year old Lily Anderson plays her guitar and sings while she gets chemo. Her smile and singing voice put her on …
This Week in Neuroblastoma – 7/23/12
Meet some new kids – and an incredible mom who’s won an Antarctica marathon and will be running the Olympic torch in memory of her son! Here’s this week’s links. Kids – Why We Fight The Ryan Edwards Appeal Ryan Edwards has exhausted all treatment options, and is now raising money to get treatment in Germany for his neuroblastoma. A …
This Week in Neuroblastoma – 7/16/12
We had a good week this week – we headed up to New Orleans to meet 1 year old neuroblastoma-diagnosed Grayson Hernandez and his family (you may remember them as the family who was surprised by a flash mob of 700 kids singing a Bruno Mars tune to them). We’re beginning a new campaign to raise awareness of nb and …